Lou Gehrig's disease

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It's 'a Difficult Moment for the ALS Community'

Relyvrio being pulled from the market after it was found to be ineffectual for Lou Gehrig's disease

(Newser) - The maker of a drug for Lou Gehrig's disease that recently failed in a large study said Thursday it will pull the medicine from the market, per the AP . Amylyx Pharmaceuticals announced it will voluntarily halt sales and marketing of Relyvrio in the US and Canada, where new patients...

After Private 3-Year Health Battle, Sandra Bullock's Partner Dies

Bryan Randall was 57

(Newser) - Sandra Bullock's longtime partner died Saturday at age 57, after a three-year health battle that he kept out of the public eye. Bryan Randall died of ALS (amyotrophic lateral sclerosis), the progressive neurodegenerative disease that was for years known as Lou Gehrig's disease, his family says in a...

Manager: Roberta Flack Now Finds It 'Impossible to Sing'

Grammy-winning singer has ALS

(Newser) - A representative for Roberta Flack announced Monday that the Grammy-winning musician has ALS, commonly known as Lou Gehrig's disease, and can no longer sing. The progressive disease "has made it impossible to sing and not easy to speak," Flack's manager Suzanne Koga said in a release....

She Doesn't Have a Terminal Illness. She'll Die on Sunday

Martha Sepulveda to die by euthanasia in Colombia, which in July loosened its right-to-die rules

(Newser) - In late 2018, Martha Sepulveda was diagnosed with amyotrophic lateral sclerosis, the progressive neurological condition also known as Lou Gehrig's disease. On Sunday, the 51-year-old Colombian mother and devout Catholic will die by legally permitted euthanasia—the first in her nation to be allowed to do so despite not...

Patrick Quinn 'Was a Blessing to Us All'

He helped create the ALS Ice Bucket Challenge

(Newser) - Patrick Quinn, a co-creator of the ALS Ice Bucket Challenge, died Sunday after battling Lou Gehrig's disease for 7 years. He was only 37, TMZ reports. "It is with great sadness that we must share the passing of Patrick early this morning," said his official Faceboo k...

'The Face of the Ice Bucket Challenge' Dead at 34

Pete Frates, who battled ALS, popularized the challenge

(Newser) - Pete Frates, a former college baseball player whose determined battle with Lou Gehrig’s disease made him, per CBS Boston , "the face of" the ALS ice bucket challenge that has raised more than $200 million worldwide, died Monday, the AP reports. He was 34. Frates died peacefully, surrounded by...

NFL Player Who Made 'the Catch' Dead at 61
49ers Mourn
Receiver
Who Made
'The Catch'
OBITUARY
Jun 5, 2018 7:41 AM CDT

49ers Mourn Receiver Who Made 'The Catch'

Dwight Clark, who was behind one of NFL's greatest plays, dies at age 61 after ALS battle

(Newser) - An ex-NFL player known for a play that pushed the San Francisco 49ers into a championship run in the '80s died Monday at the age of 61 after a battle with amyotrophic lateral sclerosis, or ALS, per ESPN . "I'm heartbroken to tell you that today I lost...

Playwright, Actor Sam Shepard Dead
Playwright, Actor
Sam Shepard Dead
obituary
Jul 31, 2017 10:42 AM CDT

Playwright, Actor Sam Shepard Dead

He was 73, suffered from ALS

(Newser) - Acclaimed actor and playwright Sam Shepard is dead at age 73, reports BroadwayWorld . Shepard, who died at home in Kentucky, had been suffering from Lou Gehrig's disease. He leaves behind an impressive legacy in the arts as the author of more than 40 plays, including Buried Child, for which...

Powder Meant to Save Miners May Be Killing Them Instead

For decades miners were forced to inhale aluminum dust

(Newser) - Between the 1940s and 1980s, miners in Ontario went through a strange ritual at the start of every workday: They'd take off their street clothes, enter a room where their work clothes hung, and as soon as the doors closed, watch the room fill with black powder that they...

Fruits, Veggies May Help Slow ALS
Fruits, Veggies
May Help Slow ALS
Nov 3, 2016 11:32 AM CDT

Fruits, Veggies May Help Slow ALS

Antioxidant nutrients and carotenoids are key

(Newser) - "It appears that nutrition plays a role both in triggering the disease and why it progresses." So says the lead researcher of a study out of Columbia University that per a press release is "among the first" to look at the interplay between diet and ALS near...

Ice Bucket Challenge Funds 'ALS Breakthrough'

Gene tied to the disease has been identified

(Newser) - The $115 million raised from 2014's Ice Bucket Challenge for the ALS Association's research and services helped fund what's now being called an "ALS breakthrough," per the Guardian : the ID of a gene linked to the disease, also known as Lou Gehrig's disease, which...

She Raised $800K for Those Battling ALS. Now She's One of Them

'I hope that my story will inspire others'

(Newser) - Over seven years, Virginia's Beth Prever raised $800,000 for ALS research because she "felt like having ALS would be a worst-case scenario diagnosis. It's like living in a glass coffin—your mind is intact, but your body is failing," she tells People . She now understands...

Stephen Hawking Wasn't Supposed to Live Past 25
How Has Stephen Hawking Lived With ALS for 52 Years?
in case you missed it
Feb 28, 2015 4:08 PM CST

How Has Stephen Hawking Lived With ALS for 52 Years?

Experts call the 73-year-old physicist's long-term survival 'extraordinary'

(Newser) - An ALS patient's life expectancy averages just two to five years after diagnosis, and only about 5% make it past 20 years, the ALS Association notes. But Stephen Hawking, the 73-year-old theoretical physicist and subject of an Academy Award-winning biopic , has beaten the odds and lived with his motor...

Ice Bucket Challenge Co-Founder Dead at 27

Corey Griffin jumped from building into Nantucket Harbor

(Newser) - One of the masterminds behind this summer's Ice Bucket Challenge died early Saturday in Nantucket. Police say Corey Griffin, 27, dove off the Juice Guys building into the harbor around 2am, floated to the surface briefly, then sank, the Boston Globe reports. An off-duty lifeguard tried to rescue Griffin...

Ice Bucket Challenge Gets Presidential

George W. Bush passes torch to Bill Clinton

(Newser) - The Ice Bucket Challenge is now claiming former heads of state as victims. But former President George W. Bush didn't really want to have a bucket of ice water dumped on his head. "I do not think it's presidential," he says in a video posted today...

'Ice Bucket Challenge' Helps Raise $13M for ALS

But some question its fundraising methods

(Newser) - In the few weeks since July 29, the ALS Association has gotten more than $13 million in donations. Over the same period last year, that figure was around $1.7 million, the New York Times reports. The big difference, of course, is the " Ice Bucket Challenge ," which calls...

Ice Bucket Challenge Gets High-Profile Victim: Christie

NJ gov gets soaked, ALS raises awareness

(Newser) - Chris Christie is the latest to take the ALS Ice Bucket Challenge : The NJ governor posted a video on Facebook yesterday of his two youngest kids, Bridget and Patrick, gleefully soaking him to raise awareness for Lou Gehrig's disease. If you've been on social media at all over...

Company Pulls Drug for Lou Gehrig's Disease

Biogen ends development after it fails drug trial

(Newser) - An experimental drug that showed promise of becoming the first effective treatment for Lou Gehrig’s Disease is being pulled by its manufacturer because it performed miserably in a major drug trial. Biogen says its drug, dexpramipexole, did nothing to improve the condition of patients or extend their lives, reports...

Lawmakers Push to Open Medical Records of Lou Gehrig

Mayo Clinic resists on privacy grounds

(Newser) - Should Lou Gehrig's medical records be unsealed? Some lawmakers in Minnesota think so, and they hope to force the Mayo Clinic to do just that, reports the Minneapolis Star Tribune . The state legislator leading the charge says it could resolve an intriguing theory raised in a 2010 study—that...

NFL Players' Alzheimer's Risk Skyrockets

Or at least it looks that way; it might be CTE

(Newser) - This is going to shock you, but it turns out that repeatedly bashing your head playing football makes you more likely to develop mental problems—a lot more. Ex-NFL players are four times as likely to die of Alzheimer's or ALS (Lou Gehrig's Disease) as other men their...

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